Tag Archives: community

Getting and becoming an Autistic mentor: a guide for researchers and autistic people

The other day I tweeted, having just had my first mentoring meeting with Kabie. I am an academic, a psychologist, about eight years out from my PhD. Kabie is an autistic advocate, and campaigner. We are both mothers, Scottish residents, and care deeply about getting a better deal for autistic people (and using research to […]

Autistic person, or person with autism?

In a new(ish) paper (first published a year ago), Lorcan Kenny of the Centre for Research in Autism and Education asks “Which terms should be used to describe autism?“. The paper provides a much-needed empirical analysis of this question which has beset the autism community for years. Conflict over the appropriate terminology to describe both […]

A new way to engage: the family in residence project at the Patrick Wild Centre

As regular readers of this blog will know, I am pretty passionate about engaging with representatives of the community in my research. Recently, with colleagues at the Patrick Wild Centre, we won funding to host a ‘family in residence’ at the Centre. This project aims to spend a year in close engagement with a family […]

Marking Time

This week I’d like to introduce a new guest blogger, Tom Pittwood from Brain in Hand. Tom is a researcher and training supporter for this company who are exploring ways to use technology, specifically mobile devices, to support independent living. Here Tom talks about his personal experiences with this technological support system. I do not […]

On relaxed theatre performances for autistic children

My husband, Ben Fletcher-Watson, is currently studying for a PhD in Drama, exploring the meaning, quality and accessibility of theatre for the very young.  Together we’re written a guest blog post on the NEXT USA theatre blog about one of the areas where our research interests overlap: relaxed theatre performances for children with autism and […]

Helpful Hints for Parents – and outcomes from the Click-East study

A couple of weeks ago I held a little tea party for participants and supporters of the Click-East project which has been my main focus (read: all encompassing obsession) for the past 3 years.  The party was a way to thank everyone involved, share what we found during the study, and get some ideas from […]

What will autism research look like in forty years’ time?

It started when, earlier this year, a gay man was appointed as chief executive officer of the American Psychiatric Association.  Like many, I was  delighted to see that Dr Saul Levin was heading up an organisation which, only forty years previously had categorised homosexuality as a mental illness. Another first thought was along the lines […]

You’re the expert, not me

Parents of children with autism, and autistic people, often share their frustration with the claims of so-called ‘experts’. I suppose I am one of these people – an ‘autism professional’ – who purports to have some kind of insight into autism.  But of course, I don’t have anything of the sort. I am not autistic, […]

What is research for?

Quite a big question to answer… I’m motivated to have a stab at it this week for two reasons. First, I’ve just returned to the office after ten days away during which time I volunteered on a residential summer holiday for children with a range of moderate to severe learning difficulites. I’ve been volunteering on […]